Kev took some real steps forward, both literally and figuratively, in December and January. However, for every photo we have of him on the move, he spends many, many, many hours sleeping both beforehand and afterwards. One day he slept for 20 hours of the 24!!
I feel so frustrated at times as we have a lot of equipment here to help with his rehab, but both his lack of energy and probably a lack of motivation hold him back.
We have found that the best incentive for him is the stimulation of having family and friends around; sadly, however, we just can’t get enough of it. For example, when Kev's dad was here, Kev was coming to the table for meals with us, was getting up regularly in the mornings and was participating in far more activities. Click here to see recent photos that demonstrate what he is really capable of.
Your input, not matter how small you might think it is, can be of enormous value. So please help us in any way that you can think of – please don’t be one of the many who think that ‘others’ are doing it!
We are currently looking seriously at the possibilities for therapies outside of Western Australia, with hyperbaric oxygen therapy (HBOT), neuro-feedback and intensive physio being the preferred choices among those that we have researched.
6 comments:
Kevin's levels of determination and hope for improvement will only be maintained if he has enough friends (old or new) and family (not all of whom show the interest or support that any of us would wish for ourselves were we in Kevin's position) to stand by him and help him and Alison in their fight to give Kevin the best quality of life possible.
This support can take many forms, if only people would use their imaginations and allow their scope for empathy and compassion lead them to do the right thing for our fellow human beings. This applies not just to Kevin, but to the thousands of others like him worldwide, but if you are reading this blog then you know how to personally reach one of these thousands - Kevin. So many people readily sign up to support one cause or another on sites such as Facebook, but their support stops at the signing up. I ask everyone to go a step or two further and do something real, something that can actually make a difference for a living person rather than, for example, weep for those who have unfortunately lost their lives and for whom there is no longer any hope. Kevin has hope, but he needs practical help from every one of us.
Kev, it is great to hear about your progress and I am really glad to see the great steps you are making in the photo album.
Grit your teeth and never give up!
Love,
Jay and family.
Great progress Kevin... I can't believe your fine motor skills... slicing meat,and shaving. Slow and steady wins the race eh! You're doing wonderfully, with your dedicated wife... but I'm still deciding whether to forgive her for posting our photo!!
P.S. Love the wedgies Kev... what a good idea. xx Kathy and Greg.
Hi Alison and Kev
Brilliant Brilliant, great to see Kev's photo of him standing holding the clothes line he will be walking in no time at all, good onya Kev.
Alison I have only one thing to say to you, your incredible, I know how reaaly hard it is to look after your husband, I too like you want the the very best for our men, and will strive to achieve it, no one can tell us NO! OR DARE THEY!!
Keep it up and remember I am as close as th telephone!
Love Haz and Jeff
(posted 18 March 2009 22:10)
It's really amazing how well Kevin has done in the last year! Two years today! Just shows what hope and determination (from Alison) can do. It would be great if Alison can trust those looking after Kevin to do their job so she can have time off! Complete time off - no going back and seeing that everything is Ok all the time. You certainly deserve that, Alison. Love to all - Kevin, Alison, Renae, Kendie, Ruby, Natahlia, Brenna
Its amazing how well Kevin has done in the last year! Two years have passed and there is still a strong hope that each year will bring more strengths and support.
It would be wonderful if Alison can trust the carers to look after Kevin and so enable her to have the rest and time off that she needs. No ongoing supervision, that is. Love to all......Kevin, Alison, Renae, Kendie, Ruby, Natahlia and Brenna
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